Contribute to Caregiver-Focused Research

Interested? Fill out our survey! https://brock.ca1.qualtrics.com/jfe/form/SV_26lZ3xPX6grvUJ8

To complete the survey, (click here ): Sharing Your Story and to learn more about the project (click here ): Sharing Our Stories – Caregivers Planning for When They are Gone

To answer the survey: https://redcap.ualberta.ca/surveys/?s=TTWHRCJRXFRRJFYF

Patient Ombudsman helps resolve complaints from patients, long-term care home residents, or their caregivers about experiences in Ontario’s public hospitals, long-term care homes, home care services, and community surgical and diagnostic centres (which includes some x-ray, ultrasound, sleep study clinics, cataract and other eye surgery centres, etc.).

In the coming months, Patient Ombudsman is planning to send out a survey to people who have made a complaint to our office to measure how we’re doing and where we can improve our service. It’s similar to a customer survey you receive after shopping with a store.

Before we starting using the survey, we’d like to hear from patients, caregivers, and long-term care residents to make sure we’re asking the right questions. We’re looking for volunteers to fill in a draft version of the survey and then let us know if the questions are clear, if the survey is easy to use, or if there’s anything we missed.

You can access the anonymous draft survey here: https://www.surveymonkey.com/r/PO-PSSURVEY

You can provide anonymous feedback on the survey here: https://www.surveymonkey.com/r/OPOFeedback

If you have any questions about filling in the survey or how to give your feedback, contact martina.gordon@patientombudsman.ca

You are invited to take part in a research study titled, Promoting brain health: A national capacity building project for aging adults with intellectual or developmental disabilities, family caregivers and service providers.

A group of researchers at the Centre for Addiction and Mental Health (CAMH) are studying a virtual education program for aging adults with intellectual and developmental disabilities (IDD), family caregivers, and service providers from across Canada. This online course is designed and delivered by family caregivers, alongside medical and mental health experts specializing in the care of adults with IDD.

Watch a short video about the course or read more information about it below!

Who Should Attend?

· Family caregivers aged 60 years and older caring for an adult with an intellectual and/or developmental disability

· Family caregivers (any age) caring for an adult with an intellectual and/or developmental disability who is aged 40 years or older

Program Highlights:

· Participate offline; view a video recording of each session each week for six weeks, at your leisure

· Receive a course workbook, with extensive resources

· Complete 3 online questionnaires that take about 40-50 minutes each

o Before the course, at the end of the course, and 14 weeks after the end of the course

· Receive a gift card at the end of the study for participating

What participants are saying:

· “This brain health program taught me how to uncover the dynamic relationship between my lifestyle and my brain health. And how to understand the cognitive behaviour of the person I am taking care of.”

View our Flyer | Watch a Short Video about the Course | Register Now: https://redcap.link/9uja13v6

Participation is completely voluntary and will not affect any present or future services provided by CAMH. Any information collected for this study will be confidential.

For more information or support, please contact the CAMH research staff by email BrainHealthIDD@camh.ca or by phone 437-328-6761.