External Opportunities
The Ontario Caregiver Organization is frequently asked to connect researchers and other stakeholder organizations with caregivers. Where appropriate, we will share these invitations and connect interested members with relevant parties.
In the past, we have supported focus groups with the Ontario Ombudsman office, research initiatives with various academic institutions and research to practice initiatives with various health care providers. We will continue to share these opportunities and thank caregivers who have engaged and contributed in this way.
There are external opportunity for caregivers in French only. For these opportunities, please visit Perspectives Aidance Naturelle in French: https://www.perspectivesaidancenaturelle.ca/occasions-externes
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Research Study: Exploring Perceptions and Experiences of ChatGPT in Caregiving
About the opportunity
Dr. Kristina Kokorelias and Dr. Maurita Harris, principal investigators at the University of Toronto/ Laurier, will be leading a research study to understand how family caregivers of older adults with chronic illnesses perceive and experience using ChatGPT (or similar AI tools) as part of their caregiving roles.
They are looking for family caregivers of older adults (ages 65 and above) who have used ChatGPT or similar AI tools in their caregiving tasks (e.g., information-seeking, emotional support, care coordination).
What will be expected of me?
- Completing a short demographic survey to gather background information.
- Taking part in a virtual semi-structured interview (approximately 30-45 minutes), conducted via a platform like Zoom or Skype.
How do I participate?
If you are interested in collaborating or would like more information, please contact isabelle.mangindaan@mail.utoronto.ca or Dr. Kokorelias directly at k.kokorelias@utoronto.ca and/ or Dr. Harris at mauharris@wlu.ca.
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Join the Advisory Committee for the Liver Cancer Referral Pathway Project (LCRPP)
About the opportunity
Liver Canada is recruiting two caregivers to join the Advisory Committee for the Liver Cancer Referral Pathway Project (LCRPP).
They are looking for people who have lived experience as a patient or caregiver navigating liver cancer care and with knowledge of patient needs, challenges, and priorities during treatment and recovery.
What will be expected of me?
You'll be expected to connect with the committee three times per year for approximately 60-90 minutes. As a member of the Advisory Committee, you'll be expected to provide input from the patient perspective to make sure the pathway is patient-centered, offer feedback on care coordination, communication, and overall patient experience. You'll also have the opportunity to advocate for patients and caregivers, ensuring their voices are heard in care decisions and program improvements.
How do I participate?
If you're interested in participating, or would like more information about the project before making a decision, please contact Anh Thu, Health Promotions Programs Lead at Liver Canada, at 416-491-3353 x 4931 or by email at atnguyen@liver.ca.
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Survey: What matters most to you when AI is used in healthcare?
About the research
This project brings together patients, caregivers, healthcare professionals, and experts to ensure the health system understands what patients and caregivers expect and trust when Artificial Intelligence (AI) is used in healthcare.
Share your perspectives in the survey, part of a Quality Improvement Project at the University Health Network (UHN) in Toronto, funded by the Future Skills Center. Your answers will help create a Patient Charter of Rights that describes what is most important to patients and caregivers in Canada when Artificial Intelligence (AI) is used in healthcare.
Participating in this survey is optional. If you choose not to participate, it will not affect you or the healthcare you receive. The survey will take about 15-20 minutes to complete. The survey closes August 29th, 2025.
What will be expected of me?
The survey will take approximately 15-20 minutes to complete your responses will help the project team learn what is important to patients and caregivers across Canada when it comes to the usage of AI in healthcare.How do I participate?
You can fill out the survey using this link. -
You cannot leave comment in this blogpost unless you are a part of the project panel.
Share your insights: Exploring Service Availability and Support for Alzheimer’s Caregivers
About the research
"Exploring Service Availability and Support for Alzheimer’s Caregivers: An Asset Mapping and Co-Design Approach", aims to explore the experiences and perspectives of service providers and caregivers regarding dementia care practices. The project is approved by the Research Ethics Board at the University of Toronto, and participation is entirely voluntary.What will be expected of me?
Participants will have the chance to reflect on their experiences, identify gaps in current services, and help shape resources that better support caregivers of people living with Alzheimer’s disease and other related dementias. Participants may also learn about services they didn’t know existed and their input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s.
Participants will provide their input in an online interview, held on Zoom, typically lasting about 1 hour. The date of the session will be booked to accommodate your availability.
You must be based in Ontario to participate.
How do I register?
If you're interested in sharing your insights with the researchers, simply send an email to ekemeziw@mcmaster.ca expressing your interest.
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DO YOU CARE FOR A PERSON WITH CONCURRENT DISORDERS – THAT IS, WHO HAS A MENTAL AND SUBSTANCE USE DISORDER?
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Are you a person living with dementia or a care partner?
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Help us improve liver cancer care in Canada
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You cannot leave comment in this blogpost unless you are a part of the project panel.
Exploring the Experiences of Caregivers from Minority Groups at the End-of-Life
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