Contribute to Caregiver-Focused Research

The Ontario Caregiver Organization is frequently asked to connect researchers and other stakeholder organizations with caregivers. Where appropriate, we will share these invitations and connect interested members with relevant parties.

In the past, we have supported focus groups with the Ontario Ombudsman office, research initiatives with various academic institutions and research to practice initiatives with various health care providers. We will continue to share these opportunities and thank caregivers who have engaged and contributed in this way.

There are external opportunity for caregivers in French only. For these opportunities, please visit Perspectives Aidance Naturelle in French: https://www.perspectivesaidancenaturelle.ca/occasions-externes

The Ontario Caregiver Organization is frequently asked to connect researchers and other stakeholder organizations with caregivers. Where appropriate, we will share these invitations and connect interested members with relevant parties.

In the past, we have supported focus groups with the Ontario Ombudsman office, research initiatives with various academic institutions and research to practice initiatives with various health care providers. We will continue to share these opportunities and thank caregivers who have engaged and contributed in this way.

There are external opportunity for caregivers in French only. For these opportunities, please visit Perspectives Aidance Naturelle in French: https://www.perspectivesaidancenaturelle.ca/occasions-externes

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Are You A Black Caregiver Living in the Greater Toronto Area?

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    After Caregiving

    Macaulee Cassaday, a producer at The Best Part, a Toronto-based production company is currently producing the second season of our short doc series "After Caregiving." The series tells the stories of former unpaid caregivers and their experience after their caregiving duties end.

    Series synopsis:
    Whether it is due to recovery, transfer of care or death, at some point, caregiving comes to an end. "After Caregiving" explores the challenges that come with navigating this transition and aims to shine a light and provide guidance to others in similar situations.

    Our Process:
    Each episode will be guided by the stories shared by our former caregivers. We will shape each episode with them, ensuring their stories are portrayed with the utmost respect and accuracy. We want to capture the essence of their experiences while also finding common threads that can resonate universally with caregivers. Each storyteller will participate in a pre-interview with our director (Saffron Cassaday), in order to be given ample time to consider and shape the story they want to tell. Storytellers may choose to remain anonymous through this process.

    You can watch season one here: https://storiesforcaregivers.com/series/after-caregiving/

    If you are interested in telling your story, please email Macaulee at macauleecassaday@gmail.com

    "After Caregiving" is made possible through the support of Telus Fund and Stories for Caregiving

    Macaulee Cassaday, a producer at The Best Part, a Toronto-based production company is currently producing the second season of our short doc series "After Caregiving." The series tells the stories of former unpaid caregivers and their experience after their caregiving duties end.

    Series synopsis:
    Whether it is due to recovery, transfer of care or death, at some point, caregiving comes to an end. "After Caregiving" explores the challenges that come with navigating this transition and aims to shine a light and provide guidance to others in similar situations.

    Our Process:
    Each episode will be guided by the stories shared by our former caregivers. We will shape each episode with them, ensuring their stories are portrayed with the utmost respect and accuracy. We want to capture the essence of their experiences while also finding common threads that can resonate universally with caregivers. Each storyteller will participate in a pre-interview with our director (Saffron Cassaday), in order to be given ample time to consider and shape the story they want to tell. Storytellers may choose to remain anonymous through this process.

    You can watch season one here: https://storiesforcaregivers.com/series/after-caregiving/

    If you are interested in telling your story, please email Macaulee at macauleecassaday@gmail.com

    "After Caregiving" is made possible through the support of Telus Fund and Stories for Caregiving

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    BRAIN HEALTH FOR ALL

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    PARTICIPANTS NEEDED FOR RESEARCH

    Please scan the QR code or visit the link below to see consent form for additional information: https://forms.gle/mxERrEgS6GDD313e6

    Please scan the QR code or visit the link below to see consent form for additional information: https://forms.gle/mxERrEgS6GDD313e6

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    We are seeking caregivers of individuals with a psychotic disorder to complete a 30-minute online survey

    Caregivers play a critical role in promoting the well-being of individuals with psychosis and supporting their journey towards recovery. Yet to date, limited research has focused on the well-being of the caregivers themselves. To explore this, we are seeking caregivers of individuals with a psychotic disorder to complete a 30-minute online survey.

    Who is eligible: Participants must have provided care for someone with a schizophrenia spectrum or psychotic disorder, be English-speaking, be 18 years of age or older, and have access to a device connected to the internet.

    The study: Our study consists of an online questionnaire, which requires participants to respond to various statements related to their general outlook on life. The study is expected to take approximately 30 minutes to complete.

    What is the benefit? By participating in this study, you will help us learn more about caregiver perspectives, which may be used to inform caregiver support in the future.

    This study has been reviewed for ethical compliance by the Queen’s University General Research Ethics Board.

    Here is the link to the survey: https://queensu.qualtrics.com/jfe/form/SV_71HGVnKY4nhChcG

    Please direct any questions to cpdlab@queensu.ca. Thank you for taking the time to participate in our research!

    Caregivers play a critical role in promoting the well-being of individuals with psychosis and supporting their journey towards recovery. Yet to date, limited research has focused on the well-being of the caregivers themselves. To explore this, we are seeking caregivers of individuals with a psychotic disorder to complete a 30-minute online survey.

    Who is eligible: Participants must have provided care for someone with a schizophrenia spectrum or psychotic disorder, be English-speaking, be 18 years of age or older, and have access to a device connected to the internet.

    The study: Our study consists of an online questionnaire, which requires participants to respond to various statements related to their general outlook on life. The study is expected to take approximately 30 minutes to complete.

    What is the benefit? By participating in this study, you will help us learn more about caregiver perspectives, which may be used to inform caregiver support in the future.

    This study has been reviewed for ethical compliance by the Queen’s University General Research Ethics Board.

    Here is the link to the survey: https://queensu.qualtrics.com/jfe/form/SV_71HGVnKY4nhChcG

    Please direct any questions to cpdlab@queensu.ca. Thank you for taking the time to participate in our research!

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    A STUDY ON THE EXPERIENCES OF OLDER ADULTS LIVING WITH DEMENTIA & THEIR ADULT CHILD CAREGIVERS

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    Are you a caregiver of someone living with dementia or showing signs of dementia?

    https://link.edapp.com/9UNg0UR2ECb

    https://link.edapp.com/9UNg0UR2ECb

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Participants Needed for Study on Care Partner Involvement in Patient Safety!

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    The FI-COFFRE program is seeking individuals like you to become part of a growing community of patient partners in research.

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Participants needed for research study on dementia