Contribute to Caregiver-Focused Research

The Ontario Caregiver Organization is frequently asked to connect researchers and other stakeholder organizations with caregivers. Where appropriate, we will share these invitations and connect interested members with relevant parties.

In the past, we have supported focus groups with the Ontario Ombudsman office, research initiatives with various academic institutions and research to practice initiatives with various health care providers. We will continue to share these opportunities and thank caregivers who have engaged and contributed in this way.

There are external opportunity for caregivers in French only. For these opportunities, please visit Perspectives Aidance Naturelle in French: https://www.perspectivesaidancenaturelle.ca/occasions-externes

The Ontario Caregiver Organization is frequently asked to connect researchers and other stakeholder organizations with caregivers. Where appropriate, we will share these invitations and connect interested members with relevant parties.

In the past, we have supported focus groups with the Ontario Ombudsman office, research initiatives with various academic institutions and research to practice initiatives with various health care providers. We will continue to share these opportunities and thank caregivers who have engaged and contributed in this way.

There are external opportunity for caregivers in French only. For these opportunities, please visit Perspectives Aidance Naturelle in French: https://www.perspectivesaidancenaturelle.ca/occasions-externes

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Exploring the Experiences of Caregivers from Minority Groups at the End-of-Life

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    PARTICIPANTS WANTED - Survey on Beliefs about Informal Caregiving from a Brock University Research Team

    The Zwar Social Psychology of Aging Lab explores healthy aging, stress, and discrimination of (unpaid) caregivers of family or friends with long-term care needs.

    They’re currently conducting a study titled Examination and validation of questionnaires on Perceptions of Informal Care and are looking for participants who are currently providing unpaid care or support to family members or friends.

    Through this study, the researchers’ aim to improve the understanding of the beliefs and attitudes about unpaid caregiving in Canada.

    You are eligible to participate if:

    • You are between 18 and 95 years of age
    • Currently an unpaid caregiver to a relative or friend who is aged 60 years or older
    • Have been providing care or support for at least 6 months or longer
    • You are fluent in English


    The study will be delivered through an online survey and will take approximately 30 minutes of your time. You need internet access to participate.

    If you participate, you can enter a draw to win 1 of 5 $50 Walmart gift cards by providing a working email address

    If you are interested in contributing to their research, take the survey here:

    https://brock.ca1.qualtrics.com/jfe/form/SV_01bW5ZQ8Xs9Up8i

    Please feel free to share this survey with people you know who provide informal care.

    The Zwar Social Psychology of Aging Lab explores healthy aging, stress, and discrimination of (unpaid) caregivers of family or friends with long-term care needs.

    They’re currently conducting a study titled Examination and validation of questionnaires on Perceptions of Informal Care and are looking for participants who are currently providing unpaid care or support to family members or friends.

    Through this study, the researchers’ aim to improve the understanding of the beliefs and attitudes about unpaid caregiving in Canada.

    You are eligible to participate if:

    • You are between 18 and 95 years of age
    • Currently an unpaid caregiver to a relative or friend who is aged 60 years or older
    • Have been providing care or support for at least 6 months or longer
    • You are fluent in English


    The study will be delivered through an online survey and will take approximately 30 minutes of your time. You need internet access to participate.

    If you participate, you can enter a draw to win 1 of 5 $50 Walmart gift cards by providing a working email address

    If you are interested in contributing to their research, take the survey here:

    https://brock.ca1.qualtrics.com/jfe/form/SV_01bW5ZQ8Xs9Up8i

    Please feel free to share this survey with people you know who provide informal care.

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Are you caring for an older person after a stroke?

    To answer the survey: https://redcap.ualberta.ca/surveys/?s=TTWHRCJRXFRRJFYF

    To answer the survey: https://redcap.ualberta.ca/surveys/?s=TTWHRCJRXFRRJFYF

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Patient Ombudsman seeking feedback on survey

    Patient Ombudsman helps resolve complaints from patients, long-term care home residents, or their caregivers about experiences in Ontario’s public hospitals, long-term care homes, home care services, and community surgical and diagnostic centres (which includes some x-ray, ultrasound, sleep study clinics, cataract and other eye surgery centres, etc.).

    In the coming months, Patient Ombudsman is planning to send out a survey to people who have made a complaint to our office to measure how we’re doing and where we can improve our service. It’s similar to a customer survey you receive after shopping with a store.

    Before we starting using the survey, we’d like to hear from patients, caregivers, and long-term care residents to make sure we’re asking the right questions. We’re looking for volunteers to fill in a draft version of the survey and then let us know if the questions are clear, if the survey is easy to use, or if there’s anything we missed.

    You can access the anonymous draft survey here: https://www.surveymonkey.com/r/PO-PSSURVEY

    You can provide anonymous feedback on the survey here: https://www.surveymonkey.com/r/OPOFeedback

    If you have any questions about filling in the survey or how to give your feedback, contact martina.gordon@patientombudsman.ca

    Patient Ombudsman helps resolve complaints from patients, long-term care home residents, or their caregivers about experiences in Ontario’s public hospitals, long-term care homes, home care services, and community surgical and diagnostic centres (which includes some x-ray, ultrasound, sleep study clinics, cataract and other eye surgery centres, etc.).

    In the coming months, Patient Ombudsman is planning to send out a survey to people who have made a complaint to our office to measure how we’re doing and where we can improve our service. It’s similar to a customer survey you receive after shopping with a store.

    Before we starting using the survey, we’d like to hear from patients, caregivers, and long-term care residents to make sure we’re asking the right questions. We’re looking for volunteers to fill in a draft version of the survey and then let us know if the questions are clear, if the survey is easy to use, or if there’s anything we missed.

    You can access the anonymous draft survey here: https://www.surveymonkey.com/r/PO-PSSURVEY

    You can provide anonymous feedback on the survey here: https://www.surveymonkey.com/r/OPOFeedback

    If you have any questions about filling in the survey or how to give your feedback, contact martina.gordon@patientombudsman.ca

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Family Caregiver Course on Brain Health – Register Today!

    CLOSED: This discussion has concluded.

    You are invited to take part in a research study titled, Promoting brain health: A national capacity building project for aging adults with intellectual or developmental disabilities, family caregivers and service providers.

    A group of researchers at the Centre for Addiction and Mental Health (CAMH) are studying a virtual education program for aging adults with intellectual and developmental disabilities (IDD), family caregivers, and service providers from across Canada. This online course is designed and delivered by family caregivers, alongside medical and mental health experts specializing in the care of adults with IDD.

    Watch a short video about the course or read more information about it below!

    Who Should Attend?

    · Family caregivers aged 60 years and older caring for an adult with an intellectual and/or developmental disability

    · Family caregivers (any age) caring for an adult with an intellectual and/or developmental disability who is aged 40 years or older

    Program Highlights:

    · Participate offline; view a video recording of each session each week for six weeks, at your leisure

    · Receive a course workbook, with extensive resources

    · Complete 3 online questionnaires that take about 40-50 minutes each

    o Before the course, at the end of the course, and 14 weeks after the end of the course

    · Receive a gift card at the end of the study for participating

    What participants are saying:

    · “This brain health program taught me how to uncover the dynamic relationship between my lifestyle and my brain health. And how to understand the cognitive behaviour of the person I am taking care of.”

    View our Flyer | Watch a Short Video about the Course | Register Now: https://redcap.link/9uja13v6

    Participation is completely voluntary and will not affect any present or future services provided by CAMH. Any information collected for this study will be confidential.

    For more information or support, please contact the CAMH research staff by email BrainHealthIDD@camh.ca or by phone 437-328-6761.

    You are invited to take part in a research study titled, Promoting brain health: A national capacity building project for aging adults with intellectual or developmental disabilities, family caregivers and service providers.

    A group of researchers at the Centre for Addiction and Mental Health (CAMH) are studying a virtual education program for aging adults with intellectual and developmental disabilities (IDD), family caregivers, and service providers from across Canada. This online course is designed and delivered by family caregivers, alongside medical and mental health experts specializing in the care of adults with IDD.

    Watch a short video about the course or read more information about it below!

    Who Should Attend?

    · Family caregivers aged 60 years and older caring for an adult with an intellectual and/or developmental disability

    · Family caregivers (any age) caring for an adult with an intellectual and/or developmental disability who is aged 40 years or older

    Program Highlights:

    · Participate offline; view a video recording of each session each week for six weeks, at your leisure

    · Receive a course workbook, with extensive resources

    · Complete 3 online questionnaires that take about 40-50 minutes each

    o Before the course, at the end of the course, and 14 weeks after the end of the course

    · Receive a gift card at the end of the study for participating

    What participants are saying:

    · “This brain health program taught me how to uncover the dynamic relationship between my lifestyle and my brain health. And how to understand the cognitive behaviour of the person I am taking care of.”

    View our Flyer | Watch a Short Video about the Course | Register Now: https://redcap.link/9uja13v6

    Participation is completely voluntary and will not affect any present or future services provided by CAMH. Any information collected for this study will be confidential.

    For more information or support, please contact the CAMH research staff by email BrainHealthIDD@camh.ca or by phone 437-328-6761.

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Join Us in Building a Dementia Support Network!

    CLOSED: This discussion has concluded.

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Calling all family caregivers/care partners for persons living with young onset dementia

    CLOSED: This discussion has concluded.

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Participation in the survey on telerehabilitation (virtual care in rehabilitation) for caregivers

    CLOSED: This discussion has concluded.

    Please click on the link: https://bit.ly/Sondage_Prochesaidants_Telereadaptation_Caregivers_telerehabilitation_survey

    Please click on the link: https://bit.ly/Sondage_Prochesaidants_Telereadaptation_Caregivers_telerehabilitation_survey

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Promoting Brain Health for People with Developmental Disabilities and their Families

    CLOSED: This discussion has concluded.

    https://redcap.link/9uja13v6

    https://redcap.link/9uja13v6

  • You cannot leave comment in this blogpost unless you are a part of the project panel.

    Living with a Life-limiting Illness: Access to Care and Related Experiences (LLLI-ACRE)

    Living with a Life-limiting Illness: Access to Care and Related Experiences (LLLI-ACRE) is a new national study that aims to better understand the experiences with care for individuals with life-limiting illnesses and their unpaid caregivers, as well as access to care and support services.

    The study will provide information on:

    • experiences and satisfaction with the care received to meet their physical, psychological, social and spiritual needs;
    • gaps and barriers in care.

    The results will help health care organizations and providers improve the development, planning and delivery of high-quality care for those living with a life-limiting illness and their caregivers in Canada.

    https://www.statcan.gc.ca/en/survey/household/5416

    Living with a Life-limiting Illness: Access to Care and Related Experiences (LLLI-ACRE) is a new national study that aims to better understand the experiences with care for individuals with life-limiting illnesses and their unpaid caregivers, as well as access to care and support services.

    The study will provide information on:

    • experiences and satisfaction with the care received to meet their physical, psychological, social and spiritual needs;
    • gaps and barriers in care.

    The results will help health care organizations and providers improve the development, planning and delivery of high-quality care for those living with a life-limiting illness and their caregivers in Canada.

    https://www.statcan.gc.ca/en/survey/household/5416